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Patient & Caregiver Resources

Patients, Parents, Friends, and Caretakers: You Are Not Alone. 

The epilepsy community is united in the fight to find better treatments and committed to providing essential support to people with epilepsy and the people that care for them. Below are some important organizations and resources for those looking for more information about living with epilepsy.

DSF is a volunteer run, non-profit organization focused on raising research funds for Dravet Syndrome and related epilepsies and providing support to affected individuals and families.

The Epilepsy Foundation has shone a light on epilepsy for more than 50 years by promoting awareness and understanding, advocating for laws that matter to people with epilepsy, and funding epilepsy research.

CNF is committed to helping children and their families living with a neurologic condition receive the best quality of care. Resources include toolkits, webinars, and one-on-one support for patients and caregivers.

Founded by physicians in 1987, NAEC is a non-profit association of more than 260 specialized epilepsy centers in the U.S. working together to provide education, resources, and advocacy.

The National Organization for Rare Disorders is a broad patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.

The LGS Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS and promoting research, awareness, education, and family support.

DDF is dedicated to preventing deaths caused by seizures by providing patients and caregivers with resources and immediate support, including education or funding for seizure detection devices.

Cure Epilepsy promotes and funds patient-focused research to help find a cure for epilepsy, but also offers many patient and advocacy centered events.

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